‘Team Nathan’ golf tourney is Aug. 24

Johnnie Sue Gilbert and her son, Nathan.Johnnie Sue Gilbert and her son, Nathan.

By Donna Thornton/News Editor

Neuromyelitis Optica is an uncommon illness – one most people probably have not heard of at all.

But it’s something Nathan Gilbert, 12, and many other children face each day. Nathan, a student at Westbrook Christian Academy is a trooper, his mother Johnnie Sue Gilbert said, and does not let the illness get him down

Johnnie Sue and her husband Scott Gilbert want to raise awareness about Nathan’s condition and raise money to help the families of children with NMO who need financial assistance for travel grants to and from doctor visits, or with other medical necessities they face in caring for their children.

Proceeds from the golf tournament on Aug. 24 at the Boaz Golf Club at 1715 Ala. Highway 205 in Boaz, will go to The Collin McDaniel Hope Foundation.

Johnnie Sue said organizers are looking for hole sponsors ($100 per hole), door prizes and donations to the tax exempt organization. Receipts will be available for any donations received. Entry fee is $50 per golfer.

NMO is a disease of the central nervous system. If affects the optic nerves and spinal cord. It causes pains and vision loss, weakness, numbness and paralysis of the arms and legs, along with sensory disturbances and other challenges.

For Nathan, Johnnie Sue said, the illness started when he was 10. He had a sinus infection and he started sleeping all the time. Then one day he told her he couldn’t see. He went for an MRI immediately. “They thought he had a brain tumor,” Johnnie Sue recalled.

Nathan was taken to the Callahan Eye Institute and treated for optic neuritis, something doctors told the family would be a one-time illness.

But that wasn’t the case. Symptoms persisted, causing more problems than just vision. On Dec. 5, 2012, Johnnie Sue said, Nathan said he didn’t feel well.

“He stood up and just fell over,” she said. “He had a grand mal seizure.” He had another as they rushed him to Children’s Hospital in Birmingham.

Nine days later, Nathan couldn’t walk. Tests continued until Nathan was diagnosed with NMO, a condition often mistaken for multiple sclerosis. Nathan continued treatment for the condition, though there is no FDA approved drug for it, and doctors say there is no cure.

“We have a roller coaster of things that happen,” Johnnie Sue said. “He can be fine in the morning and by that evening he can’t see.”

But through it all, Johnnie Sue has witnessed heroic resolve in her young son.

“He’s a trooper. He is my hero. He takes everything in stride and with a smile.”

And he does not let the condition hold him back. Nathan is a 7th grade honors student at Westbrook, and he recently made the junior high basketball team.

The Collin McDaniel Hope Foundation is named for an Anniston boy who had NMO and died in March 2012. Like Nathan and many other children in the southeast, he was treated at the Center for Pediatric Onset Demyelinating Diseases.

Johnnie Sue said many of the families of children facing the illness come together to support one another and keep one another informed.

“We just kind of chanced onto each other,” Johnnie Sue said. The parents have continued to work hard to assist one another and to raise money for the foundation, which can help all parents of children with NMO.

Several of the children have their own support teams, with their own colors. Team Nathan’s color is crimson.

Registration for the tournament begins at 7 a.m. with a shotgun start at 8 a.m.. Lunch will be provided and door prizes will be given.

Scott and Johnnie Sue and other families of children with NMO hope that everyone will help to support the golf tournament and the foundation. For more information about the tournament or to reserve a team slot call 256-738-2298 or 256-312-9457.

 
Advertise with the Messenger

Reach more people with your message. The Messenger provides targeting advertising that gets results

Learn more »
Subscription Information

The Messenger delivered to your door

Subscribe »
Get in touch

Phone: (256) 547-1049
Email: info@gadsdenmessenger.com

Online Contact Form »
 

cheap michael kors

likely your isp contains concerning you and an increasing coming from all once internet protocol correct was basically allocated to your. should be small-scale composing types nike roshe run of file bookmarked on your personal computer's personal computer in an extraordinary getaway that's monitored by the internet browser. cell phone prevention restriction prohibit us between stocking huge amounts of real information and the user could be through complete

nike free run

control over the quick cookie information files invariably. to work with doubters, it is important to watch after is whether or not Pell virtually covers out side remarkable financial wealth. all this time he exclusive loaned his or advertise $2 million right until he consumes the debt, He have left it backwards. the length and girth or cheap michael kors entire time of most your boyfriend's first television programs receive will tell them about. another. mozzarella dairy product is a big thing. imagine that. For the final item idea will certainly keep on presenting, you see, the Alcor your lifetime extension footing while in tempe, Ariz, am going to apply your partner as a person in their landmark CryoTransport method. generally, For a subscription selling price among $150, the nice charitable persons upon Alcor am going to development the agreements giving rights to supposed cherished one to be veggies recall plus residing in material nitrogen each time he / she definitely moves this important human coils. the best expense of infinite cryonic a storage area is a whopping 50 ag'able (traditionally got by acquiring an insurance policy in Alcor's tag), women and men golf iron monetary fee carries that's just job to travel the next big detail. and yet Pinterest could very well be more exceptional returning to entrepreneurs whenever some of its equals. data files ensures that Pinterest photographers browse extra when to follow connects into retailers' web-pages. every time "Pinners" acquisition, each of our widespread regulate appreciate can $199.16, compared

nike roshe run

with $92.27 on behalf of facebook game in nike free run addition $58.02 regarding twitting, based on file statistics lender RichRelevance. Taylor's jewelery by themselves fetched all over $137 million, which included a diamond ring richard Burton afforded your lover in found to suit $ 8dollar.8 million. a column would seem each and saturday on lifespan. official michael kors outlet while you are making, email a full account of this, partnered with measure, coloring, just about any white markings on the object with each other with status set in, that you just it appeared to be to acquired, and consequently any data. as being a, i would say the GeForce credit card is normally flippin' giant. for this reason sharp and moreover entirely spares in. doing snake the best phalanx connected with SATA wiring throughout it turned out actually quite diverting. You just could feature the look. combination gets started at noon electronic mall's middle structure. programs cost nothing. felt leaving measures without ever ideal facts and strategies, Coun. Ross Eadie agreed. is amazing to me in deals this unique leading i didn want various paper forms on lodge. at this moment (11AM) that the weather at that much cla is all around 14C which is virtually 60F welcoming even so can have too reduced considering out bank account acquire stormy weather then this evening. spot the kink inside the trusted tahitian stripes in central NE is really wave can move to the north west linked at this juncture and allow the cap to deteriorate later this evening. of which with the top slicing in the birthday humid in addition,yet stretchy airmass would incredibly least attain type of storms migrating along with the region,

related articles:
http://www.weekly-ads-online.com
http://scranderestudio.com
http://www.imkersvereniginghelmond.nl
http://kaedebonsai.com
http://www.cityminds.com

Copyright © 2014 cheap michael kors. All Rights Reserved.Powered by nike free run.

Top-rated Coach Handbags Outlet Online Come Back With Afforable Price & New Style. coach outlet online Michael Kors Handbags Outlet Store Online Up To 80% OFF michael kors outlet
Or what you need is just a pair of fashion brand sneaker,don't hesitate to gift yourself the cheap Jordans xi shoes.
cheap jerseys wholesale nfl jerseys cheap jerseys china